From my hospital bed

So I was admitted to hospital 3 days ago after the recently diagnosed Angina became unstable. I’m up and down with pain and symptoms but in the right place. Tomorrow I get taken to Papworth hospital, a specialist cardiac hospital who will be looking after me for the next week. On Tuesday I will have May triple bypass surgery and then starts the recovery and hopefully a healthier and fitter life.

It’s all very surreal, this has happened so quickly. One minute you’re a healthy 47 year old guy, the next your in hospital getting exhausted even eating some food. I’m lucky that I have an incredible young lady in my life, Caroline hasn’t stopped running around after me and fussing. I know how hard it is for her feeling hopeless at times watching me in pain or being carted off in an ambulance again. 

Time to rest, even typing this on my iPad has me exhausted.

Perspective 

When I had my adverse reaction to Ciprofloxacin just over 2 years ago it felt like my world had turned upside down. The onslaught of physical symptoms each day followed by the mental torture, anxiety and depression was without doubt life changing. I’ve fought slowly to get over the remaining symptoms but they persist and only time will tell if I ever fully recover from those 8 days of medication.

But the recent diagnosis of my unexpected heart condition really puts a fresh perspective on life and what we deal with. I had my initial consultation with the surgeon yesterday where my situation was explained plain and simple. My left major artery has severe narrowing and is 95% blocked. Being male the left major artery is hugely important as it feeds the majority of the heart. At the moment I have a tiny artery feeding the heart and as such I am walking a tightrope with my life. I was told that without a doubt I will die without having this operation. So he has fast tracked me as quickly as he can and I will be going in next Monday it seems for an operation on Tuesday and a resulting triple bypass operation that I hope will give me my life back and a future for many more years. 

Why have I got this? He doesn’t know but it’s possibly genetic and inherited and he will be testing samples to look for possible causes. Maybe I’m just unlucky or maybe even Ciprofloxacin has played a part in this but I can’t say for sure.

What I will say is that my perspective has changed significantly since this has happened. The reality of a life threatening condition versus an long term condition can not be compared. I’d rather be dealing with my floxing symptoms than this any day. So when your feeling down and like your floxing damage has robbed you of life, remember you’re still alive, you still have a chance to recover and whatever happens never take for granted the life you have no matter how bad it seems. I’ve lost parents and grandparents to illness and I’d do anything to have them back.

The day the Earth stood still

When I was a kid I used to watch the old science fiction movies that were repeated on the television. Some were classic B movies with huge rubber monsters and spaceships dangling from string and others became classics in their own right. The day the Earth  Stood Still was one of those classics… but it isn’t the subject of this post, that was another day the Earth stood still, the 21st June 2017.

In recent months I have dealt with a range of physical symptoms along with the anxiety that follows them. The one particular concern was episodes of palpitations and rapid heart rate. Between December 2016 and March 2017 I had a whole bunch of testing completed to look for a potential heart issue. Multiple ECG, 24 hour ECG, blood test after blood test and an echocardiogram. The conclusion was that all my tests were normal, my heart was fine, the palpitations were stress which they may well have been.

A couple of months ago I experienced a new symptom, chest pain and discomfort. Starting with an episodes of stress enduced pain due to an idiot car driver, followed by some minor chest pain caused by exertion walking and swimming to another exertion triggered episode walking up a couple of long flights of stairs. I kept track of these, started monitoring my heart rate and blood pressure and produced a report to give to the cardiologist which detailed the episodes and my observations. Based on those observations cardiologist decided to book in a CT Coronary Angiogram to rule out a heart conditions from the picture. I ended up paying for the scan to get it more quickly but the result wasn’t what anyone expected as it showed a potential narrowing in my left major artery. The cardiologist then decided a full Invasive Coronary Angiogram would be required to look in fine detail at the heart arteries.

On the 21st June 2017 I arrived at Peterborough City Hospital with my partner Caroline for that Angiogram procedure. Somewhat nervous the hope was that the result would allow us to still take our planned holiday a few weeks later to Florida. We arrived at the Angiogram Suite early and I left Caroline behind as they whisked me off to the preparation room. My obs were taken (heart rate, blood pressure, SpO2 and temperature) then I waited. After a while a smiling happy looking guy came through some double doors and walked over. He checked my name and date of birth then led me back through the same doors he’d arrived through and on into an operating theatre. The anxiety I felt was pretty intense, a lot was riding on this going smoothly and the result being what we hoped.

In the middle of the room there was a bed or more appropriately named, an operating table. Above it hung an X-ray camera and to the left 3 large computer screens hung from the ceiling. To the righ of the bed was a metal table and a chair. I was led to the operating table where I climbed up and lay on my back. Almost instantly the room filled with 4 people, 3 nurses and the radiologist. They swung into preparation mode, placing a blood pressure cuff on my left arm and an SpO2 monitor on the index finger. The nurse on the right proceeded to prep my right arm which was to be where the catheter would inserted. She shaved under my wrist and wiped it clean ready for the cardiologist to arrive which she instantly did. 

She asked me to explain my recent experiences and then went on to explain what she was going to do. Simply put, she would insert a small catheter into an artery in my wrist and guide it to my heart where some contrast dye would be injected into the arteries of the heart directly and a bunch of X-rays would be taken from various angles. Of course I was thinking I’d rather be anywhere but on that table but I also knew I needed to know if my heart was healthy. She proceeded to inject some local anaesthetic into my wrist and swiftly inserted some sort of canular through which she would be able to insert the catheter. It wasn’t too unpleasant but it certainly gave a nasty sting as it went in. However the pain started as she pushed the catheter into the artery. After a few moments I had a terrible feeling of nausea and my head suddenly felt heavy and like it wanted to explode. The nurse called across that my blood pressure had dropped and the cardiologist stopped and ordered a canular to be inserted into the left arm and a fluid drip to increase the pressure again. A few minutes passed as they flew into action and once again my obs returned to a low but stable level. 

The cardiologist returned to the right arm and tried to push the catheter further but it had become constricted by the artery which appeared to have tightened after the previous incident. She had only managed about half the required images and decided swiftly that the remaining half would need to be completed by inserting another catheter through my groin instead. This would go up the femoral artery, one of the large main arteries and should be much easier to do. So she removed the catheter from the arm which by now was in quite some pain. A swarm of people hovered over my groin with shavers, wipes and needles, not the sight you want to see at any point in time! They shaved an area ready for the canular to be inserted, injected a local anaesthetic once again started over. Although there was some initial pain getting the canular inserted I didn’t really feel the catheter at all and in a few minutest X-ray machine had spun around and finished taking its images. Once again the nurses began the reverese of the preparation and bit by bit the devices were removed from my body and I was wheeled out to the recovery room, it was done.

Now my recovery time would usually be pretty quick if only my wrist had been used but since the femoral artery is bigger, it also bleeds more. One of the nurses had to press down on the entry point hard for ten minutes to try to stop the blood flow. After which I had to lay flat for an hour fore attempting to sit. The hour slowly ticked by and in that time my Partner Caroline was allowed to pop in briefly to say hi. Clearly I looked a bit worse for wear as she was rather emotional for a moment but I was glad to see her smile once again. She left to sit in the waiting area and I stared at the ceiling for the next hour before being sat up. I was then allowed the magic cup of tea and a sandwich which oddly was amazing, I enjoyed every sip and every bite almost like it was the first time I’d ever had them. Moving my arms was still difficult, the canular was still in the crease of the left arm and there was an inflatable wrist band over the entry point of the catheter on the right wrist. 

The nurse looking after me, Gemma, then proceeded to deflate the wrist band a small amount every 15 minutes. Each time my hand felt more blood flow and there was increased pain. I even felt a bit dizzy and had to lay back down for a while. The clock ticked and after a couple of hours the wrist band was off and I was feeling some relief although the pain in the groin and arm was worsening as the anaesthesia had worn off.

Across the room the double doors swung open and the cardiologist walked in and headed over to my bed. She pulled the curtains around the bed and asked how I was before checking the groin would for any swelling. She proceeded to push down another 5 minutes on the entry point which was once again a little painful. She then pulled out a diagram of my heart and started to summarise her findings. “So Mr Harris, the angiogram does unfortunately validate the CT Coronary Angiogram report and you do have a serious issue with the left artery of your heart”. By the time she had said the last word I already felt numb as I lay looking up at the ceiling, my mind racing and emotions overflowing. She continued to show me the diagram, a tree of arteries branching out, a large artery going down the middle with two branches, one to the right and one to the left that also divided into additional branches. She pointed out three areas the clearly showed narrowing and then proceeded to explain. “This is the right artery, its smaller and as you can see looks perflectly normal. This is the left artery which you can see divides at these locations. These highlighted locations are where there is significant narrowing, here by this split and here and here”. By now I’m thinking this isn’t good but at least you can use stents these days to fix these things. I already knew the Florida holiday was a definite no now. She then continued to explain, “The problem is that the location of these narrowings is adjacent to these dividing branches and that means we can’t use stents, I’m sorry to say you are going to need a heart bypass operation, and it will be a triple bypass”.

That was the moment the Earth stood still…

I felt the emotions kick in as the realisation of what was just said hit me. I looked at her and she was upset herself, clearly not a nice experience having to break that news. I felt my mouth open and out of it came one word rather loudly… “SHIT!” To which she replied.. “Yes indeed…” It was at this point that she asked if I had a partner with me and I said yes she’s just outside. So they called in Caroline who had no idea what had just taken place. I saw her face as she walked around the corner, that smile I love, that voice I miss when I can’t hear it and those gorgeous eyes but I felt incredibly sad because I knew she would be facing this as much as me. The cardiologist again went through the explanation and Caroline gripped my hand, visibly upset as was I. The next steps were made clear, I would be referred to Papworth Hospital, one of the leading U.K. Cardiac hospitals and in few months I would be having the operation. I’d be in hospital a week followed by three months of rehabilitation and physio to get me back to health. In the mean time I’d be starting various medications and need to take it slow and steady.

Everyone left and I lay looking at Caroline, both of us feeling like the world had just been turned on its head. We had to try to take any positives we could from this and that included the fact that at least I had a diagnosis now and it had been found before it found me. Also Papworth is a really good cardiac hospital with a great reputation, if I had to go anywhere then that’s the place to go. We tried to put a brave face on things and the nurse finished taking out the final canular before preparing the discharge letter. We then left and started on this new journey into the unknown that I am now following.

A couple of days have passed and yes it’s a bit of a rollercoaster of emotions for all of us. I’m not relishing the idea of being operated on but I know have no choice. There has been an outpouring of support from friends and family including some who have had a bypass or know people who have and have since had a very happy and active life. That at least gives some feeling of comfort and hope.

One thing is for sure, facing moments like these makes you take stock of life. You realise what’s important in, not the possessions you have or the house you live in, none of those material things. It’s the people you love, the friends you’ve made, the memories you share together that really stick with you when all else is gone.

How a moment can change your life

I’ve seen a lot of ill health over the years, friends, family and my own, too much. The last 4 years have been particularly bad for my own health with around 2 years of reoccurring UTI later suspected to be a prostate issue. The following 2 years have been dealing with the aftermath of the adverse reaction caused by the Ciprofloxacin I was given to cure the prostate issue! It’s been a long, tiring and stressful period of life and one I had hoped would eventually pass leaving me with relatively decent health to live the rest of my days.

Yesterday things changed somewhat and once again I’m facing an uncertain future and life. I have for many years dealt with having a slightly fast pulse and slightly raised blood pressure. However it was always assumed that the cause was simply anxiety, the go to diagnosis when doctors don’t really know what’s causing a problem. Last year I started to develop slightly longer episodes of palpitations than I was used to and I was referred to a cardiologist. It took over 3 months to see the doctor and after an initial appointment I was referred to have an echocardiogram. I could see that the doctor wasn’t convinced anything was actually wrong but to appease me and my concerns he booked it. Another 3 months passed and the echocardiogram was done and showed no obvious issues.. hurray!

However I had some additional symptoms that started to develop in particular some discomfort on the left side under my ribs. I assumed this was digestive in origin and once again figured anxiety was the culprit. Then I had an episode of quite acute chest pain during a stressful encounter with a car driver who was driving right up my rear end. This was followed by a number of chest pain episodes caused by exertion and again stress. I notified the cardiologist and provided a detailed report of what had been going on and they decided to refer me to have a CT coronary angiogram but again it would take weeks or longer. The problem was that I am supposed to be flying to Florida from the UK in July and I wasn’t sure if I could fly.

So I ended up spending a lot of money to get the scan performed privately in order to speed things up. That was done on Monday in Wales, a very professional and nice hospital which has once of the most advanced scanners in the UK. It didn’t go exactly to plan as they struggled to get my heart rate down to the magic 60bpm event with heaps of beta blocker. I ended up having a longer scan than I had hoped and therefore more radiation but it was necessary. I got home Monday feeling pretty unwell and with a much increased shortness of breath. I stopped the beta blockers I had been taking in the hope those symptoms would reduce which then did, but the adrenaline type sensations have returned since. I’m currently waiting to get some alternative drugs to decrease the work the heart is doing.

So the results were sent to NHS cardiologist on Wednesday morning and I chased for an update. Although I was told the report had been passed on and I would get a response I heard nothing all day even after I chased multiple times. Then again yesterday I chased multiple times and had pretty much given up when I finally had a call at around 6.30pm.

It was one of those moments when reality seems to fade away for a moment and the voice in your ear becomes noise and meaningless. Expecting that he was going to tell me it was normal and again likely stress I was totally unprepared for the “we’ve found a narrowing in the left major artery that feeds your heart” that entered my ear. It took a moment for my mind to make sense of the words and then the realisation hit, I’ve got a problem with my heart, it’s not anxiety. He explained that he couldnt be certain of the extent of the narrowing without doing a full angiogram so he was going to book an emergency appointment (still 1 to 2 weeks on the NHS) and once that was done they would decide how to treat the condition. Basically the scale of narrowing will dictate whether I’m put on medication, have a stent or worse case need a bypass.

Now part of the reason this is all so unexpected is that I’m not high risk for heart disease. I have never smoked, I might have 1 or 2 beers a year! I have. Pretty healthy diet, my cholesterol is normal and my weight is only slightly higher than it should be. Yet somehow I have developed heart disease… as if the floxing wasn’t bad enough.

So now I have an unknown again whilst I wait and I know it’s highly unlikely I will be able to make the holiday to Florida in a few weeks time. The best I can hope for is relatively early stage build up and a successful stent placement which should in theory give me some years of better health. At 47 I have rather a lot to do in life yet, there’s too much that has been put on hold the last few years with my partner Caroline and my family and I need to amend that, get life on track, fix the broken things and make the most of the life ahead. When these things happen in life you realise that stress, jobs, things out of your control in the world, possessions, big salaries etc… all mean nothing in the end. Without your health you have nothing and all the material things and the stupid worries simply cause you anxiety and lost time you can’t ever get back.

Hoping for a better few weeks!

Two years have passed

It’s now two years since I took Ciprofloxacin for a suspected prostate infection, two years since my life was turned upside down, two years I’ve in many ways lost. Yet still, after two years I am not fixed, not back to my old self and sadly still suffering daily with issues. So I wanted to blog an update and also some thoughts and ramblings related to all this.

A couple of weeks ago I provided an update and that was largely focused on the repeated heart palpitations and pain episodes. Things have continued to go up and down although I do feel a little better in recent days. My GP has written to the Cardiologist to try and get me in more quickly to do a few more tests and I have a 24 hour ECG booked for 2nd June.

So what do I think is going on? The reality is it could be many things or indeed a combination of many things.

  1. The worse case scenario is that there is some underlying health condition related to the heart or arteries causing Angina like pains however I’m not really sure that’s the problem.
  2. Another plausible option is that I am having sporadic problems with the Vagus nerve and the heart is getting random electrical triggers caused by some completely unrelated benign episode elsewhere in the body. That is a real possibility as there are many accounts in the “Floxed” community of similar symptoms caused by the Vagus nerve.
  3. Another again contributing factor will be stress of which I have many and varied! There’s no doubt the anxiety caused by on-going health problems feeds into this causing a cycle of more anxiety and more stress.
  4. Floxing itself may well be a contributor and I tell you why, the muscle degradation and collagen depletion that I have experienced all over my body could quite easily have affected the heart, which is of course a hugely important muscle! Maybe the Cipro damage has simply weakened the heart as it has all of my other muscles.

Unlike the doctors, we are the only people who can monitor ourselves 24 hours a day 7 days a week. Now it is true that our perceptions can be affected by our emotions and worries so it’s important we are cautious in our judgements and also that we don’t let ourselves be skewed by stories of others symptoms or conditions. However it is important to take note of the mental and physical symptoms we get, try to come to some distinction about their origins and triggers and relay that information to our doctors.

Now many of us struggle in that last aspect, taking the information to our doctors. Often it is the case that the doctors fail to listen or take our evidence seriously. It’s clear many frown upon self diagnosis and individual research and I accept to some degree that it is too easy to latch on to one symptom then the next and self diagnose cancer or a tumour or some other horrendous condition. That being said, a doctor should also not rule those conditions out without thorough investigation. If I go to the doctor with frequent heart issues then you expect to have that investigated, and to be honest fairly quickly! Luckily my GP has been good in that respect although It does sometime feel like he would rather I went away and didn’t keep turning up with more issues!

And herein lies another problem with people with unexplained illnesses and conditions, the word “unexplained”. Why do we keep going back to our doctors? Because we don’t have a satisfactory explanation and treatment option. Often the doctor will focus on one aspect, perform some tests for that, the usual scenario is doing a full blood count because they are not sure what to do with you! If you do have specific symptoms then you might be referred to a specialist in whatever discipline seems appropriate. If after those tests and consultations the conclusion is… “inconclusive” then you are left no better off both physically and mentally, often left with no direction and no help, thrown back on the heap of despair!

In my case, having been “damaged” by a therapeutic drug, I am immediately outside the realms of normal doctor investigations. I don’t have an illness as such, what I have is lots of symptoms of lots of illnesses. Being “Floxed” is a particularly bad reaction to end up with because of the level of damage caused and what gets damaged… our cells. The cells and in particular the Mitochondria, are crucially important in the health of our bodily ecosystem. As a result of this, the most common issues post Floxing are generally “autoimmune” in nature as our bodies natural state of affairs has been knocked out of the ball park. The resulting self harm the immune system does to us can be devastating leaving many with long term damage to multiple systems in our bodies. The scary thing is that the damage can come along later, much later and not necessarily at the time of taking the medication. In my case I had an immediate reaction which appeared to improve over many months only to explode almost 6 months afterwards having taken Ibuprofen, a commonly documented trigger amongst the Floxed community.

So for me it’s two years into this battle and I don’t feel significantly improved if I’m honest. There are many symptoms which I now only get fleetingly and some which have gone altogether it seems but others have held on tight and won’t let go. I’m not as bad as many out there which I am thankful of but I am sufficiently bad that my life is no longer normal and there are many restrictions on what I can do now.

On a good day I can wander slowly and maybe cover 5km or so but not without pain and not without consequences after. On a bad day I have acute burning and pains in my knees, ankles and feet and even wandering 50m is hard. It’s the nature of this condition, it’s not constant and not predictable.

The damage done is subtle and hard to detect in scans and x-rays, requiring surgery, arthroscopy and biopsies to actually check the internal condition of joints, tendons and muscle fibres. Each of those procedures in itself carries additional risks and I have first hand accounts of long term additional pain and suffering after having some of these. So that leaves us in a difficult place where there are often “indications” that there may be something going on but it’s all a bit fuzzy in nature.

In my case I have many indications but no hard diagnosis:-

  1. I had a back MRI that showed 3 slipped discs, another MRI show a thickening of the tendons in my foot that could indicate tendonitis yet pre-Cipro I had no symptoms or indicators for these issues.
  2. I have re-occurring joint pains, joint weakness, burning in joints that could indicate arthritis yet the blood tests don’t indicate that (although my consultant believes I have arthritic symptoms now). Again prior to Cipro I never experienced any joint pains or stiffness at all.
  3. I have had significant worsening of my eyesight although the eye health itself is fine, but this is another well documented Floxing issue.
  4. Nerve issues come and go with tingling, pin prick sensations, muscle spasms, teeth numbness, twitching, skin burning and weakness. Again my nerve conduction tests did show some nerve damage but it wasn’t felt to be overly significant and may well improve… once again something I have never had prior to Cipro.
  5. Insomnia comes and goes but in the beginning it was horrendous!
  6. The collagen depletion has left me with foot atrophy and loss of padding around ankle joints, knees, my backside and elbows. It hurts to sit on a hard surface or walk barefoot on concrete or lean on a table with my arms because it feels like I’m putting weight on bone with nothing in between.
  7. My most debilitating issues are musculoskeletal, in combination with the weakened tendons and ligaments I have lost large amounts of muscle. I can actually feel the difference in the structure of my arms, legs and back, the lumpy muscle has been replaced with soft flesh as if the muscle simply vanished. I struggle carrying a single bag of shopping now as I can feel the weight go right through my arms, down my back, down my legs and into my feet and it hurts. I used to carry 3 or 4 bags in each hand! My mobility is massively reduced, leaving my ability to do things around the house, do my hobbies, travel, go out, live life! massively restricted.

I am staying positive and I still intend to get some or all of my life back but I realise the timescales are longer than I had hoped for. It may be a year, two or more before I can look back on this and feel like I am well again but that’s what I intend to do somehow.

Remember, don’t take Ciprofloxacin unless you really have no other choice!

 

 

Another month passes

The last month has been a continued rollercoaster of issues, some clearly Cipro related and others that could be totally unrelated it’s hard to know. One of the concerns was a sudden increase in heart palpitations and related discomfort, often I’d be getting skipped beats or thumps every few minutes. I’m used to feeling them, having had a problem with stress about 15 years ago and episodes of anxiety and panic at that time. Since then I would get them infrequently but usually when tired or very stressed, but never this many and this often.

In December I saw a cardiologist who based on initial observations and historic evidence thought it wise to have an echocardiogram done. Being the NHS this took another 3 months to happen which considering this is a heart related issue is pretty dire. Anyway, the palpitations had eased a little in the weeks leading up to the scan and on the day of the scan I felt relatively OK. The result of the scan was that in general the heart looks healthy, no real obvious issues with the chambers or valves except a small amount of leakage in one valve which wasn’t considered anything to worry about. The scan doesn’t show the condition of arteries as the resolution isn’t enough so they could not comment on that aspect or even provide a reason for the AF type symptoms I’d been getting.

So the palpitations continued with some days worse than others until the frequency started to decrease and I thought great, things are getting better again. Then out of the blue I had an episode that did frighten me as the pain and sudden start was unexpected. Driving home in the dark I had a car drive right up behind me with head lights dazzling me. For miles the car just sat there and I obviously became annoyed, I could feel my pulse increase and the feeling that adrenaline was kicking in. Then suddenly my heart beat started jumping all over the place, followed by a tight clamping pain in my chest. I had to pull over, I felt dizzy, my right hand was shaking like a leaf, my left arm was uncomfortable. I pulled over and it took about 10 Minutes for the pain to subside and my shaking to stop but I felt awful after, drained, nauseaous and hot. I went home and to bed to try and sleep…

The next day I went to the GP who did a quick ECG, could see no obvious issues and sent me home. I had already read up on my symptoms and my conclusion was a couple of possible scenarios. The less concerning one being that it was simply a bad panic attack which somehow caused the blood flow to the heart to reduce triggering the unpleasant symptoms. The other idea was it could be Angina pain which very much matched the scenario and the symptoms. Of course I am hoping the second option isn’t the cause but I now feel like I need to have that ruled out. Having spoken to a friend who has suffered heart issues it was clear that you don’t mess about with pains in the chest, better safe than sorry.

Anyway, that was a week ago and this week I’ve only had a few flutters again but I’ve been feeling very fatigued, my vision has been blurry again and my mind has been a bit fuzzy. With regard to definite Cipro related issues I’ve had increasing flares of Arthritic burning in my knees, ankles and elbows along with stiffness in fingers and shoulders. My left calf has once again developed the cramps painful feeling I first had 15 months ago which is frustrating. This weekend has been very quiet as I’ve not wanted to walk much, the feet just hurt too much to stand around for long. The loss of padding which has been a steadily increasing thing over the last year now makes bare foot walking painful. My heels have become pretty sore the last 4 or 5 days, throbbing, tingling and tender to stand on. Likely a mixture of the collagen loss and tendon issues. Another symptom I’ve confirmed with many others suffering the same sadly.

I’ve been getting twinges and pain in my lower back now for about 7 months I guess. The MRI identified 3 bulging discs including a tear in one which likely explains why I’m getting this. I’m being extra careful to not lift too much or bend quickly as advised by the consultant but it’s yet another restriction on my already restricted physical activity. Like everything we can’t see what’s going on inside regularly to know if things are getting worse or better. My back MRI was done almost 6 months ago and I’d be interested to know if the discs are worse or improved. The sciatica and weakness has subsided so I assume the disc has improved that was pushing on the nerve.

Physiologically things are steady, I still feel annoyed and get angry and depressed on occasions as I think about the damage these pills have done to me and how many years of my life will have been vastly restricted as a result. Sleep is OK probably 75% of the time, but when insomnia does kick it it’s brutal. I am focusing on trying to learn new skills for work, improve my outlook on life itself and work on plans to improve my future… there’s a lot of things to fix and it all takes time.

So this week I’m kicking off a renewed plan to get my diet healthy and improve my physical and mental state. I’m going to start making Kefir and drink that every day as it is supposed to have a big impact on gut health… which in turn is supposed to help the immune system and pretty much everything else. The relationship between gut health and many illnesses is now widely agreed, the ability for the nutrients to be properly absorbed must be a big factor.

** UPDATE

I started writing this post a few days ago and had to leave it as draft as I didn’t have time to complete it. Since then a whole series of things have happened healthwise which I want to document. The palpitations I’ve been getting have continued steadily at a level higher than normal and I have been getting discomfort and burning in the chest along with that. On Tuesday morning I called the GP to follow up on blood tests taken after I saw him a couple of weeks ago and thankfully they were all normal but I needed a follow with him to discuss the continued palpitations. At 3.10pm I walked into his office and discussed the situation, I had the feeling he was annoyed that I had once again turned up with health issues but what do you do, sit at home and worry or feel unwell without a solutions. I appreciate the work GP doctors do and I understand they are dealing with lots of pressures but they are paid to investigate our concerns and to find solutions that either make us well or make us comfortable so I resent feeling like my attending a clinic is in some way a burden.

Anyway, he reluctantly did another ECG which looked OK apart from something he remarked about a Q3. On checking previous ECG it was there also so it wasn’t a recent thing and could either be a sign of a previous heart attack… or nothing at all! Anyway I got the feeling he didn’t really know what to do next and he ended up referring me to a clinic at the hospital that could hopefully do more tests. So I left the GP surgery and went to get in the car where my Caroline had been patiently waiting. Then the car wouldn’t start! I had about an hour to get to hospital and no transport. Frantically she called the auto services whilst I tried to get a taxi but to no avail. The auto services arrived in about 45 minutes and fixed the car but by then it was too late and I was told to go to the usual Accident and Emergency department. So after 4 hours, more blood tests an ECG and having to sit with a Canular stuck in my arm I eventually leave with an appointment to come back the next day. The next day I attended a clinic and will be having a 24 hour monitor fitted again shortly. Hopefully they will find a reason for all this but at present the tests are at least negative and nothing concerning has been found.

That pesky Neuropathy!

So the up and down issues continue along with some additional issues that I could do without. The last couple of weeks have continued to offer their challenges with up and down muscle/tendon type pains and increased neuropathy issues. In particular the burning in my knees has flared multiple times and I’m getting the uncomfortable pin prick type sensations throughout every day at the moment. Both of these are a worsening of symptoms I could do without. I’m also finding that my right eye vision is frequently more blurry and is having a noticeable impact on my vision in general. I did get my eyes tested last week and although my prescription has changed quite a bit in a year he didn’t notice anything suspicious in the eye health or pressure test. I think I will mention it to my GP on my next visit because something is going on there… yet another thing!

In addition to that the prostate concern continues with additional blood taken to day to test PSA levels, full count and a number of other markers. I am concerned about this and hope that it is a case of a benign prostate related issue. I also have an echocardiogram in a couple of weeks time to check out my heart, I don’t imagine they will find anything of concern but it’s good to be checked out anyway.

In my last post I mentioned I had a GP appointment booked and that went well. The GP who isn’t one I have seen very often was pretty interested in the Cipro reaction and asked quite a few questions. He also said he would arrange for some physio and gave me some details about getting help with general wellbeing and dealing with the stress of this whole situation. I wish there was some way to reduce or eradicate the neuropathy and allow the muscles to strengthen again. The pin pricking isn’t debilitating but it is pretty annoying, it’s the tendon twitches, muscle aches and joint pains that cause the most restriction and pain. I know that I’m suffering a bunch of symptoms of autoimmune disease and mitochondrial damage caused by the medicine but the uncertainty of recovery and timescales plays on my mind daily… there’s no doubt I’m somewhat consumed by the situation with my health above pretty much anything else which isn’t unexpected considering without my health my options in life are vastly reduced.

Stress levels have been much higher as well which I think is impacting my mood, my sleep and my physical floxing symptoms. Life is throwing everything including the kitchen sink in our general direction at the moment and it really is overwhelming at times. All I know is that life throws up many challenges and many surprises, some good and some bad, we just have to try and wade through and make the best of what we can.